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Thank you Nan.
im going to sway a bit from my last comment that it was not working. As we know our snowflake disease impacts each of us minute to minute, hour to hour.
Ont thing I’ve noticed of recent, my maps seem to be less in length. I. Able to get some restorative benefit from a 30-45 minute nap, previously 1-2 hours.
im sure this is why clinical trials must be difficult. Subtle changes often not noticeable. I probably am looking for a magic huge curative change perhaps. Like prednisone, if we take a huge dose, magic happens. Perhaps for me this will be more gradual and baby steps.
I’m not one to give up, so I will take what I get.
when I don’t journal, I generally don’t because I’m doing things so i don’t have time.
the more I do, the more tired I get, so less time to journal. Lol.need to journal daily for this vyvgart test.
fingers crossed for improvement after tomorrow’s infusion.#3.