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Victory!
After over a year of trying to find treatment and doctors, I found them! I had a chest x-ray that showed a mass. The doctor that did that sent me to a cancer specialist and I did a chest CT which showed the mass on my thymus and masses on both adrenal glands and thyroid nodules.
The cancer specialist was amazing! He has set me up with a neuromuscular specialist, a neuro ophthalmologist, and I found an endocrinologist for the thyroid and adrenal masses.
I am scheduled to have a robotic thymectomy on May 25th. Seems a little strange to be excited about surgery, but I’m so excited that progress is being made!