• Community Member

    Member

    My neurologist said there is no cure but remission is possible – he used the word remission Since he is part of 3 clinics, including the neuromuscular clinic at our local teaching and research university where I see him,  I assume he’s current on terminology. I’ve been stable for almost 3 years now and the plan is to reduce then eliminate immune suppressant medication this summer to see if I have gone into remission. He initially said to wait for 2 years of stability (relatively symptom free) but extended it a year. I paused medication for the 2nd to 4th Covid shots for two weeks each time and felt great, and I’m looking forward to this summer to see if I am in remission.