Reply To: New To Diagnosis and at a loss as to how to handle.

[Community Member]

You were very lucky to be diagnosed in only 6 months.  NO doctor could diagnose my acute OCULAR and Generalized MG in 8 months of searching for an explanation.  I was finally diagnosed by a third floor nurse at my second hospital.  The three neurologists at the first hospital did not know about MG either, as well as my own eye doctor ….   despite severe droopy eyelid PTOSIS and competing eyeballs.  Many MG patients have told me that an knowledgeable eye doctor can refer you to a Neuro-eye doctor, to get his suspicions tested  … for thymus and antibody bad scores.

You are very luck to still be working.  I had a late afternoon-evening shift, probably like you are on,  but the later hours in the day were always when my undiagnosed illness started getting my leg muscle, and finger strength dying.  No one could diagnose it  .. and it scared me, of when it would be bad, on a work night.  SO I was forced to retire  .. until I could be ME AGAIN.    So it is a great idea to get some resting in to prepare you for the rest of the day.  It has really helped me … along with 180 MGS of MESTINON and 2000 MGS of CELLCEPT daily.

You need to rest and get in remission  … before the “terrible two’s start”.  Take plenty of pictures and stop to enjoy the new kid at home.

GOOD LUCK.