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Hi Andy,
The phrase you used, “divorced from the real world”, really hit the nail on the head as far as what I’ve been dealing with. I am at a well-known teaching hospital (Vanderbilt) and this current doctor I have is a Neuromuscular Specialist – yet I am still not comfortable in her ability to pay attention to important details. (Like you, I often have shortness of breath and that has not seemed important to her – but for me, it is rather scary). I am now convinced, after hearing from so many people living with gMG, that I do need to look around and consider finding a new doctor. First and foremost, one who LISTENS. Thank you for sharing!
All the best to you in your journey – Lisa