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Hi Bob,
Surprisingly, this Neuro of mine is at Vanderbilt and is a Neuromuscular Specialist who says she sees at least 2 MG patients each day (her words). She is “an assistant professor in the Neuromuscular Division and sees both neuromuscular patients as well as those that may require botulinum toxin injections”. She also fussed at me for using the word “remission” in relation to a period of time when my MG symptoms appeared to go away/lighten up. Weird, right?? But that’s for another discussion. From the feedback I’m getting from everyone, and my own gut instinct, it looks like it is time for me to search for another neuromuscular specialist – even if that means traveling further away from what’s available to me locally. Finding the right doctor feels like such a “roll of the dice” and it’s definitely a source of stress right now, but thank you for your encouragement because hearing from other MG patients and knowing there actually are good doctors out there who are taking CARE of their patients gives me hope!