Reply To: New To Diagnosis and at a loss as to how to handle.

[Community Member]

It is an interesting disease. My first sign was my left eyelid. Since then I had an MG crisis and stopped breathing on them (I was in the hospital for another reason). I take Pyridostigmine 120 mg 4 times per day and CellCept 1000 mg. twice per day. I also had an eyelid lift that my insurance company paid for as the ptosis affected both eyes. I am now considered “stable” and have no issues. However, after 4 covid shots I show no antibodies and my doctors are trying for the new drug Evusheld. I hope you continue to do well.
Lisa