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What perfect timing!
What is weighing heavy on my heart is that I have been working for four months now trying to get into one of the bigger clinics to get help with my MG and it is so difficult. In NM there are very few neurologists and those there are have very little experience with MG.
I have also just had a CT scan that showed a tumor on my thyroid and another in the area between my lungs. It has been very difficult to get scheduled to have the recommended biopsies. One doctor will only refer to a thoracic cancer surgeon. I have to have my primary care doctor refer me to an endocrinologist and I haven’t been able to speak to anyone to request it for over 2 weeks. I am frustrated that the medical system doesn’t work and I have to set up reminders for myself to follow up on each call every 2 to 3 days.
Good news: I heard from Cleveland Clinic yesterday to schedule an appointment for late April!
I appreciate the opportunity to unburden some of this to my fellow MG friends.
Michelle