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To reply to Michelle’s question, …. being currently in Arizona, I am thrilled with cool shady days. I am formerly born and raised in Minneapolis .. so I love the cool weather, all the shade trees, and the breezes blowing in from all those lakes, and remark …what a nice Minneapolis morning, when it happens in our blazing heat so seldom.
I have been told that people with MG have a harder time in HOT climates, and can really suffer in the summers … more than more northern MG patients. I forget which of the 11 meds that I am taking, that have pharmacy papers that warn me, to not be in sunlight for too long, and cover up, as at least one of my MG meds, can cause skin cancer.
I am on 2000 MGs of CELLCEPT daily and 180 MGS of MESTINON daily. My doctors have finally gotten me tapered off that NASTY STEROID PREDNISONE. It gave me INSOMNIA, heavy WEIGHT GAIN, and combined with STATINS gave me medically induced DIABETES II. Once I was tapered off that, the doctor was able to taper me off LANTUS and LISPRO by October 25, 2021 … so no more insulin shots, and I am under 6.2. Once they started feeding me the steroids and statins, I was 350, 400, and “high” … on the nurses light meters ?? and getting shot at least twice a day.
Now that I am in MG remission, I feel SAFE. I can go back outside, grip a lawn mover handle, a edge trimmer grip, or a rose clippers. I can kneel down and plant flowers and trim bushes … without worrying if I can get back standing on my own. When I was undiagnosed, I struggled to trim roses, using BOTH HANDS, as my fingers were WEAK. More than once, I had to crawl to a chair, try to get in it, and rest, so that my leg calves, could get me into a walking position. So I am back to being me again, and worrying less … but go slow and take breaks and rest.
PS to Amy … I also collect and reupholster much older chairs and other furniture pieces. Before I got sick and undiagnosed from MG, I worked for local and college theatres, getting props and furniture for their period shows. Some times if you were living in an old city, such as Tulsa or Greenville, you could pickup a good piece at the estate auctions, or the weekly auction houses, especially dining room chairs and tables cheap, as most every bidder, already owns a dining room set. I have already bought several large dining room tables and made them smaller ….. so they become nice writing desks, or a pair of two legged, side wall tables, for stage sets. If the furniture looks too perfect, the local antique sellers will always outbid you, but if it has any flaws, needs recovering, or is an “out of Fashion” piece, you can get it CHEAP….