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Husband was diagnosed with BP after first incident at 60. Nine month’s later had a second. First two years we tried high prednisone doses, Mestinon, Cellcept, IvIG. After three years it generalized and we found a Neuro at Southwestern in Dallas. Now 3 years into a drug trial for Zylucoplan and in pharmacological remission. Zylocoplan is supposed to hit the market in ‘23.
I am a research nut. There are several new drug trials that are showing great promise. Keep up with the trials and if your MG generalizes or even if the ocular MG get to a point where it really effects your daily living, find a research hospital doing MG trials.
Autoimmune Diet, exercise, avoiding extreme heat or cold, staying at a healthy weight all make a huge difference. We don’t adhere 100% to autoimmune diet unless MG gets out of hand. Sugar seems to be the real enemy for him. Moderate alcohol hasn’t been an issue if other sugar is avoided.
Stay on top of the developing med research. Best of luck!