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Mine started in my eyes. Never had DV just blurry and ptosis. I am over 4 years out and am still considered mild. So it doesn’t necessarily get much worse but often does. I did overhaul my lifestyle and strictly stick to it. Exercise and nutrition for me is very important as is sleep and stress reduction. Also it’s not a degenerative disease so it doesn’t cause destruction of your muscles. I visit the doctor for every issue and keep up with all routine exams so I stay in good health. I see my neurologist every 6 months.