Reply To: Working with MG diagnosed as a senior

[Community Member]

I am 61 years old, getting ready to leave work on disability due to being out of ;breath everywhere I go.  I weigh in at a whopping 425 lbs which is definitely part of my problems.  But I have been overweight all of my life but never as big as prednisone has made me along with the other drugs.  It seems any drug I take either makes me hungry or sleepy.  That is the main reason I have to quit working.  I commute 90 mins each way for my job and I am constantly falling asleep at work.  It takes me forever to get home since most nights I have to pull into a parking lot and take a 30 – 45 minute nap so I can finish my trip.  I have started walking with a cane since I have a tendency to fall and have had to be taken to the hospital due to cuts to my forehead and bleeding.

I have other ailments as Asthma, Sleep Apnea, High blood pressure, High Cholesterol and under active thyroid.  I would love to think I will have a period of remission like I read some of you have experienced but I doubt it.  I also do the IVIG treatments and feel much better for the first two weeks afterward but then the next two weeks I go downhill.

Hopefully I will get approved for disability and not have to worry about traveling to work and keeping my job and just to concentrate on my health.

 

Thanks for listening.

Ron Clever