Reply To: Working with MG diagnosed as a senior

[Community Member]

Hi all, I’m following this thread with great interest, and I really appreciate the information provided. I’m newly diagnosed at age 57, and I’m striving to keep working for four more years when I may be able to retire. It took 5 years to get diagnosed, and all the while my fatigue, vision problems, and difficulty swallowing continued to get worse. I have lupus (SLE), so at first I attributed my symptoms to that. But when I started having trouble balancing (falling down stairs, off a ladder, running into walls, etc.) I knew it wasn’t the SLE.

But I’ll give you guys a little perspective. SLE causes fatigue; I’ve dealt with it for 20 years. Also brain fog. But MG fatigue is otherworldly. Just OMG I have to sleep now. I don’t know if it’s worse for me because I also have lupus, but it feels different. I’m assuming that it’s a different source, the CNS fatigue, perhaps, that just shuts everything down.

Mestonin has really helped. I’m able to drive home safely at night. But if you all who made it to retirement have any tips for me, I’d sure welcome them.