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Hello Amy! I’m seronegative having a tiny bit of blocking antibodies considered normal. On my 3rd or 4th neurologist who is questioning my MG dx. Finally scheduled for SFEMG next month & she’s wanting me to see a neuromuscular doc who specializes in ALS due to changing symptoms & not really needing mestinon anymore. My speech hasn’t slurred in a while but I’m having more weakness in my forearms & hands. I’m also extremely stiff in extremities mainly & lots of painful spasms.
My MG dx was given by my neuro ophthalmologist due to double vision that eventually resolved after a round of prednisone. Not sure how much that had helped as my medical diary I kept didn’t show much improvement while on it.
Sorry for the long post! Will get the results of SFEMG at my followup with neuromuscular neurologist at the end of April. My journey with this round of medical issues began in 2019 & I’m tired. Just want some answers & praying it’s not ALS! Wishing everyone all the best!!!