Myasthenia Gravis News Community › Forums › Healthcare and Treatments › Do you have Seronegative MG? › Reply To: Do you have Seronegative MG?
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MemberI too am seronegative. I went through multiple doctors. I have episodes of dyspnea with normal o2 saturation, as a chem & ICU nurse it was hard to accept it had nothing to do with pulmonary issues. Finally diagnosed at Vanderbilt in Nashville, after years of different doctors. Luckily my primary doc kept pushing me to try more doctors. I live in southern IN so we take the 3 hour trip to Nashville every 2-3 months. I finally am stable on 80 gm of IVIG, Mestinon & Immuran. I am a very determined to stay active & have gradually increased my activity to walking 6 miles a day. It wasn’t easy, but I always told patients if you go to chair you’ll stay there. Good luck everyone, it is so nice to know I’m not the only seronegative or out there. Thanks to everyone for sharing.