Reply To: Working with MG diagnosed as a senior

[Community Member]

Thank you for the links, Norm. I’m 56, just diagnosed, and I have had SLE (lupus) for 20 years. I thought lupus fatigue was bad, but this MG fatigue is on a new level. It hasn’t seemed to get much better on pyridostigmine, either, which has been disappointing. I seem to improve slightly with caffeine and sugar, but I’m afraid of gaining weight with the sugar.

I’m grateful to learn that the fatigue is normal (not just me being a wuss). I can retire in 4 years (uncomfortably, but survivable), and I’m just trying to hang on until then.