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Hi Jennie. I am not a doctor, but if ever there were a candidate for trying one of the new FcRN inhibitors like Vyvgart, it sounds like you. A few months ago, my dosage of methotrexate was increased to 15mg/week. Since you haven’t tried methotrexate yet, I will let you know if it works. I also had to discontinue Cellcept and Imuran due to side effects. Plex helps me alot, and 10mgs prednisone/day seems to be keeping me stable.
I don’t know how you take so much Mestinon — 120mgs at a time is as high as I can possibly go. I am trying to get by with much less; if it weren’t for the side effects, I would use more.