Reply To: Do you have Seronegative MG?

[Community Member]

Good Morning, I had to stop reading last night. My eyes are terrible in the evening. Currently I am seeing 2 neurologists and a neuro-opthalmologist. I am seeing a doctor at the U of Minnesota Health Centet for my MG. I did have the option of going to Mayo in Rochester. I went there for my Sjogrens and breast cancer. I was much more mobile than and my vision was better. It is a big place. I still may end up going there.

I have had the 3 day iv solu-medrol steroid and a few of the taper packs that help for a few days, but it messes with my diabetes and causes such fluid retention that my doctors hesitate to give steroids to me.
Unfortunately we discussed IVIG, but because I have had multiple blot clots, in my lungs and leg, I cant have it.

I am wondering about PLEX. I don’t have many options because of my medical history.

Ironically I felt fantastic during my chemotherapy for my breast cancer. I was on Adriamycin/Cytoxan. I hope somebody will mention a treatment option I can pursue.