• Community Member

    Member

    Cyndi,

    I too have respiratory shortness of breath.

    as of now doing pretty good in the IVIG, which in the past 2 weeks has made my SOB mostly on exertion, but for 8 years  it has been from speaking for an hour or more, and or upper body usage fatigue.
    Or I will be active and about 2-4 p.m. literally fall into bed, SOB and must sleep for 1-2 hours and awake with my energy renewed. It coincides with my legs ready to collapse.

    Do any of you experience anything similar?