• Community Member

    Member

    I have taken Solis for 2 .5 years and it hasn’t seemed to help.  It’s better for me than IVIG which I have had alone and with Solis.  At best it’s kept me stable.   I started taking Cellcept along with all the other drugs it’s seemed to do a little.   I like most of you wish for a cure or something that will get me back to normal, but I don’t think it’s going to happen. I am fortunate that I have good insurance and wife’s a ICU/CCU Rn and both sons are in bio medicine.  They all watch me and read constantly about what will help.  It could always be worse.  As a guy once told me at least we’re above the dirt