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Mental health toll of MG
MG has taken a toll on my mental health too, not just my body.
Does anyone else struggle with this – and what’s helped?
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6 Replies
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Yes it often feels like a dark cloud hovering over me. I constantly need to distract myself but the second im not doing anything, the negative thoughts begin again
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I am newly diagnosed with only occular so far and not had any change with prednisone and 2 rounds ivig. Can’t take mestinon due to side effects. I struggle with determining if some new ache or pain is Mgor age or something else. It has been 5 months and there has been little change. Sometimes I think I am just going crazy
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I’ve been facing generalized MG since 2014. For me it come down to prayer / meditation each morning to identify 5 things I am thankful for, 5 people I should thank for their care, 5 things I want to do for the day. In the evening I repeat the meditation to reflect on 5 good things I witnessed during the day, 5 hopes I have for tomorrow, and 5 people who mean the most to me. It is a way to keep the darkness out, let hope in, and maintain a joy in living.
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I’m recently diagnosed,11/2025. I do my daily meditation I first thing in the morning but I like your ideas of the “fives” and going to add them to my day! Thank you for the information. I struggle some days with self pity, but then I remember there are others who have it worse than I do,so I just keep trying to be thankful.
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I get tired of people questing blood test and EEGs. I struggle with betrayal trauma and head trauma on top of the hope that people stop lying. I had psychiatric specialist, but neurologist do my multiple tests.
Betrayal of that others did not just profit but that they lied about the facts and then tell me to pray. It is worse than a hypercritic. They are just waiting for me to die so they feel good about using me again.
The reason why lying hurts me and betrayal of courts is that people who are innocent will and are the targets. I understand the concept of the brain for females and males are different in the passages and the trauma to the brain that causes significant cognitive changes.
My betrayal is by people who claimed that they loved me and that those who have fought years for a relationship and my doctors have held my hands and read while others tried hard to destroy my life and body. Most have seen more than most should ever experience in a single lifetime. I need a puppy so I would not be so isolated and abandoned, it held with the betrayal by forming a trust bond. I been left to die and this one or two just want what was material and my grandchildren.
I do have betrayal PTSD and complex PTSD, but I use anxiety medication to help slow down my seizures from the multiple TBI. But I have PTSD from betrayal of the facts that people rather me be gone than to live. My wheelchair hurts their image and what hurts me is the image they need me to be remembered as instead of the truth.
A lie and prayer do not make religious sense. Covets and prayer is not a friend but a thief. Hurt to betrayed as even a human being.
My fatigue is severe and I get my IVIG’s and I do much better in standing time and exercise time limits increase by 47.5% after day three.
I feel stress of how to live with nothing and no one and meet my necessities, and those are life. I get stressed when being cut down for facts instead of being supported in the truth. I will curse you over my doctors. I would never let anyone hurt them. But you don’t curse them. I have been thrown out of three small not so smart towns, and I got town that going to pull the phone survives if this ugliness doesn’t cease.
Pride over my life and that sucks!!!
Have a good weekend.
Tonya M Moss in Kennesaw, Ga.
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Even though I’ve not long been diagnosed, mentally, I feel shot to bits. I still can’t get my head around all of this. Like a few others have said on here, “It’s like a dark cloud hanging over you”. Sorry if I’m paraphrasing slightly.
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Definitely can feel that way initially
But months down the line, things get easier and you learn to deal with and get more resilient.
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