Myasthenia Gravis News Community › Forums › Newly Diagnosed › How old were you when you were first diagnosed? › Reply To: How old were you when you were first diagnosed?

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    I think the MG started even in high school but definitely in my early 20s. I was officially diagnosed at 28 in 1975. It took about a year and a half and 3 doctors to get answers. There wasn’t much info on MG back then and the only treatments were mestinon, prednisone, and neostigmine. Thymectomy was available and I had that done. Plasmapheresis was brand new and experimental. I was the first one to receive it in my area and it was done manually at our local Red Cross. I was taken from the hospital to the Red Cross every day for I think 5 days. It’s been so long I don’t remember how many. I did go into a long term no med remission a few years after my thymectomy. It returned the fall of 2018. I think I was in the peak age for women to have MG did help with my diagnosis. I was so rare back then and my family doctor, who knew me, was the one who said it was MG. All the specialists kept coming up with other things. And when he sent me back to the neurologist who then did a repetitive nerve test said the my family doctor pulled off the diagnosis of the century. So having difficulty getting diagnosed isn’t new.