I have just had exact thing four the last 3 days. That is something that has never happened before and it sure looks weird when I look at my bathroom mirror. It does go away with a dose of pyridostigmine. My usual symptom when I have not taken a dose on time is that my eyes are very painful.

As far as getting diagnosed it sounds like I got lucky. I had been having issues with blurry vision for a while but with the blurriness changing daily, sometimes hourly, it’s kind of hard to get a variable pair of glasses. I had an acute episode of such double vision that I would see two totally separate stop signs (no, I want driving; just and example). I was able to get in with my optometrist the next day and he did tests and imaging that didn’t show anything wrong. He did an urgent referral to a neuro-ophthalmologist. They scheduled me for that week on friday at 4:30 pm so I was really expecting a cursory exam and be sent on my way. But she was very thorough and I was there for well over an hour, first doing a detailed history to look for any clues for what was wrong. Then she put me through A LOT of different tests. I don’t have the usual antibodies but she was still able to diagnose the omg after an MRI, blood tests, and a trial of pyridostigmine. She is very knowledgeable about mg. Any time I send a question through the patient portal she doesn’t just respond to the question, she CALLS me to discuss it even on the evening. I wonder if she is ever not working because she also does shifts at the hospital.

So with all of that, it sounds like, reading posts from others, that I got really lucky!