Richard, if you look at some of my previous posts, will fill you in, but I have more like you, questions than answers. I have the opposite to you. Neuro wants me to stay on Steroids, eye guy says they are damaging my eyes. And my sight is deteriorating. Buts it’s the tiredness and muscle weakness that’s most debilitating. Have just had an echocardiogram that was ok. Few issues, but minor and in keeping with my age group. Awaiting results from Nuclear chemical stress test recently taken and having a biopsy on my thyroid next month as found a 2.9 cm cyst which has not grown bigger from a year ago but never had a biopsy so will know for sure.

All to rule out anything else untoward. Last month had a two big doses of IVIG (as stopped vyvgart, as didn’t seem to be working and reduced my IGG levels substantially)but 3 weeks ago developed a rash on the palms of my hands and slightly on the heels of my feet which appears to be a side effect of immunoglobulin and although I learnt from this site that a few had
developed hives after IVIG, what I have, does not seem to be hives, but something
called Dyshidrotic Eczema, and it won’t go away, even with antihistamine
and prescriptions creams. Anyone had the same? Regardless, my tiredness levels are bad plus I keep developing bad swelling on the top of my left foot with some tingling in the other foot, really weird…..

Just wish I knew what to do and basically to minimize some if not most of whatever is going on?