I have GMG but my only principal problem is ocular. After Mestonin and steroids were no help to my closed eye situations I then had fusions. Eight infusions of vyvgart as well as two of rituximab. I got about 4 days of my eyes being open after those. Finally went back to where I was first diagnosed as he had been following me throughout my journey. My ophthalmologist operated on me and attached muscles from my forehead to my eyelids. Can’t tell that it was ever done. My eyes now stay open and close normally. Best thing that ever happened to me. The decision was about 3 years in the making. I spent most of that time with Band-Aids holding my eyes open. Not to be taken lightly but it is a very good solution,or at least a has been for me.

Matt Sereby