My DW and I travelled Full-Time in our 42′ Diesel pusher pulling our towed all over the US visiting everything we could.  Museums, battle fields, mountains and deserts.  We enjoyed this life-style for about 8 years.

We broke down camp and hit the road to our next destination, which was Cottonwood, AZ, to Work Camp for 3 months in a beautiful desert valley.

Travelling North out of Phoenix you must take I-17.    This road has pretty  a steep long grade and lots of twisties.  Trucks often slow down to 20 to 25mph going up that long grade on this Interstate Highway.

About 1/2 way up the grade I got severe double vision in lots of traffic.  I made it to the campground, using one eye only, and hooked up electricity and power to the coach, then told my wife.  We left immediately for the VA Hospital in Prescott, AZ and was diagnosed with 4th Nerve Palsy.  Went through a bunch of tests and they released me.  At this time I was also experiencing extreme fatigue and a general out-of-body feeling. I was diagnosed with severe siusitis althugh my sinuses were clear and given antibiotics. Less than a week later, I again went into the VA  ER due to again extreme fatigue and a feeling that I was watching life go by in slow motion in real time.  I also developed speech issues when stressed along with hand tremors.  Was wearing an eye patch by this time.  I again was released after some more tests and IV. being told that I was most likely having a mini-stroke. The ER told my wife to call 911 if my symptoms worsened, as I would most likely be having a stroke..  During this time I was also seen at the local Hospital ER.  Was seen by a neurologist who said I most definitely was NOT having a stroke and who sent me home again.

About 2 weeks later, I again went to the VA ER and again, was released after a bunch more tests.  Interestingly, with rest comes a bit more normalcy and the extreme fatigue, tremors and speech fade somewhat.

I got a referral appt. from the VA for a local ophthalmologist.  He was the first one that put the label MG next to my name and suggested that I see a Neurologist ASAP.

I could not get an appointment either through the VA or my then civilian health insurance, in less than 4 months.

Long story shorter, so packed up and DW drove from Prescott, AZ to Houston, TX.  The following Monday morning I presented myself to my PCP during Sick Call at my local VA Clinic.  She scheduled blood tests and made a referral to a VA Neurologist two weeks+/- later.

More tests including EMG and I was diagnosed.  My medical file grew to about 3″ thick.   That was 2019.

Still undergoing treatment with Mestinon, Imuran, Prednisdone and monthly IVIGs.

During the time between the onslaught of MG and my diagnosis, we discovered many Neurological disorders that could account for my symptoms.  We were eyeing Parkinson’s , MS. ALS,  MG and others.

Scott