I am a Vietnam vet, diagnosed in 2019 with gMG and undergoing IVIG treatments monthly as well as Mestinon, Imuran and Prednisdone daily.

I was recently told by my Neuo, that the VA Pharmacy at Debakey VA Hospital, would not allow me to start the Vyvgart treatment because I am currently undergoing IVIG treatments.

Clearly there is a disconnect here.  One would stop IVIG and Plex while undergoing Vyvgart treatment.   (Not sure about my other meds yet.)  Evidently no one told the Pharmacy how this FDA approved treatment is actually used.

Spent 45 minutes on the phone today with the Vyvgart people.  Finally after three phone transfers, I got to a guy that Confirmed it was currently in use in the VA hospitals – Atlanta specifically.  He has found  that many IV provider/clinics, do not understand how to use the drug and therefore say that it is not available.  So the Vyvgart people are trying to educate the users, the IV Clinics and Neuros, what this stuff is and how to use it.  I would hate to think that the clinics are not interested in this product because they are happily full with products they know.

Anyway, they, the Vyvgart people, will contact the Debakey VA Hospital and educate them.  Maybe????

We shall see.

Scott