My words have already been stated, accept I might include stubbornness – meaning not accepting completely the limitations imposed upon me. I try and do as much as I can, as often as I can and not allow MG to totally ruin my quality of life. This may mean rest periods, pain periods, but I want to remain independent for as long as I can.  I force myself to be active, even if only for short periods of time and my activity may be reduced or limited.  I refuse to allow MG to beat me.