Myasthenia Gravis News Community › Forums › Life Hacks and Tips › Mestinon Side Effects › Reply To: Mestinon Side Effects
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Community Member
MemberHey Sawyer, sorry to hear you are on Kaiser!
It makes your care a bit more difficult but it can be done.
Take your requests to your current neuro, ask if they will help you to get more current care, do your homework and take documentation showing how the newer treatments are more affective and less hard in the body. You are only 23. Long haul.
Sometimes giving them the ammunition is what it can take.
There are some facilities with great doctors, others not so great as everywhere but at the end of the day, they are in it for profits.
So you must be the knowledgeable patient.
If they won’t, don’t can’t do any more,
Ask if they should or could refer you to a neuromuscular MG specialist. Assuming they are not.
You also should look in the NIH for any trials going on in your area for the new proven drugs. That can get you in free.Read your Kaiser rules.
There are situations where if they do Not have a neuromuscular specialist you file a formal request to see one to consult your case.
If you are not receiving the treatment appropriate for you, they must refer you out.
Are you in CA?
No or So?I can’t type it all here but if you want to talk privately, friend me and I can give you some pointers.
Also look In here there are Kaiser people here that may be receiving appropriate care and you may be in the area where they have a good neuro.
Just some thoughts.
Theresa