Hey folks, it’s nice to know I’m not crazy. I have been complaining to my neurologist and general physician about pains for some time now and after being repeatedly told it isn’t from my MG, I have spent money on several X-rays to check for arthritis or other issues and now they want me to do an MRI because everything looks good.

I take prednisone and have been diagnosed for about 10 years now. My pains started in my shoulders and fingers. There are times my finger will feel like it’s broken or severely sprained, I even had to tape it up for 3 months this summer and then it’s all of a sudden better. My shoulders really hurt in the mornings and later in the day, even when I’m sitting watching tv. It can get to the point that it brings me to tears(and I deal with a lot of pain from migraines)
I am lucky in the fact that I don’t have to much weakness from my MG, only climbing stairs and working above my shoulders, and am still able to ski 20 days a year and walk 23-30k steps @ work w/o any real difficulty… but the other pains that I feel cause me issues on a daily basis.
I can deal with the limited weakness that I get, but sometimes the shoulder & bicep pain I feel can be a bit overwhelming!
I to have often wondered if it doesn’t have something to do with the fact that certain muscles aren’t working properly and others are overworked, or that sometimes certain muscle’s don’t get the signal to retract causing them to “lock up” as the others around them are moving.
I don’t know, but it HURTS and it wasn’t like this before MG.