• Community Member

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    Hi everyone. I too am antiobody negative.  I’ve been tested so many ways. It has been difficult to find a neurologist that actually believes me.

    BBernatte, your diagnosis sounds a lot like mine. The tesilon test is the only test that had positive result.  But clinically I present with MG.  (If it looks like a duck and quacks like a duck, it’s a duck.)Double vision was also my first symptom and continues to warn me when my legs are about ready to give  out.  My legs are my biggest issue.  I have trouble swallowing and generalized weakness.I’ve had every test and been on a variety of treatments, prednisone, mestinon, cellcept & IVIG.  Currently I take prednisone and mestinon.  I had hoped the IVIG would make my symptoms more tolerable, but……..so if anyone is doing something that allows them to get through the day, please share.